Booman Tribune ~ Comments ~ Rx's Can Cost MORE Under Medicare D(isaster)!!!

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Rx's Can Cost MORE Under Medicare D(isaster)!!! | 42 comments (42 topical, editorial, 0 hidden)

Indy (4.00 / 3)

hey you sound like we may have had the same brand of stupid ER doctors(ha did I mention I hate doctors?).

I was still trying to work when this happened to me. I was in severe foot pain among other things and I had just taken a new med at work. I started to black out and face was going numb. Someone called my sister who came and rushed me to the ER. (I had not been diagnosed at that time with this neuro disease yet)Anyway the ER doctor checked heart rate etc etc while I was basically out of it...yet I thought I heard him say to my sister-'take the drunky home and when it wears off she can go back to work and continue taking her pills'.

My sister got me out of there and said that yes that is what that prick said...when I called my doctor his nurse told me to flush the pills down the toilet.

I have since found out that when I am in the throes of basically a neuro attack my trying to take meds is very iffy. If in relative calm periods-like now-taking meds isn't quite as problematic but still have to be careful. There's a whole list of drugs you can't take with this disease including mega doses of certain vitamins.

'Poverty is the worst form of violence'--Gandhi

by chocolate ink on Wed Apr 19th, 2006 at 06:58:24 PM EST
[ Parent ]

Re: Indy (4.00 / 3)

Grrr. That makes me so mad. I'm so sorry you were treated so badly! And it's extra scary when you're already sick and undiagnosed. I wasn't diagnosed yet either when my thing happened, and while my ER doctor didn't say anything, I suspect she thought I was high on something.

I have an anti-doctor bias, too -- which I really wish I didn't have, but after becoming chronically ill and then being chronically treated like crap by so many of them, it's hard to avoid. You know how it is. Everyone who's chronically ill knows how it is.

And I have the same thing with iffy reactions to meds when I'm in flares. It's so common you'd think they'd be more aware of it. I want to make some snarky comment about how maybe they're too busy going to fancy-shmancy Big Pharma conferences in the Caribbean, but I don't want to offend the good doctors, and I have faith there might be some left...somewhere.

by IndyLib on Wed Apr 19th, 2006 at 07:13:39 PM EST
[ Parent ]

Re: Indy (4.00 / 3)

Damn, I lucked out--I got a good dr. who feels that the best thing for this country would be a single payer health care system.

"First, they ignore you. Then they laugh at you. Then they fight you. Then you win." Mahatma Gandhi

by Street Kid on Wed Apr 19th, 2006 at 08:19:45 PM EST
[ Parent ]

Re: Indy (4.00 / 2)

Thanks Indy, and I wish I could say that was the worst I was ever treated but it isn't even close. I've even had several doctors say flat out I was lying about my symptoms(this when my sister had to half carry me into doctors offices) or accuse me of being hysterical. There idea of hysterical is apparently to tell them that no I'm not lying...nor is my sister as she was included in this. Still not the worst story either. Except all that crap ended up in my so called medical records-which are a real joke of misinformation, mistakes and outright lies or personal shit like saying 'she came in reeking of cigarette smoke'-so what asshole.

'Poverty is the worst form of violence'--Gandhi

by chocolate ink on Wed Apr 19th, 2006 at 08:50:28 PM EST
[ Parent ]

Re: Indy (none / 1)

Oh I totally know what you mean, chocolate ink. A few have said the same thing to me.

And back when I was still undiagnosed, I once saw my GP's (she's not my GP anymore) husband, who was also her partner at their family practice, to get a refill of the xanax that his wife rxed for the horrible anxiety symptoms I used to have. (I now know that was due to high thyroid that they failed to diagnose.) And the man told me to my face that I was drug-seeking. What an asshole.

I was the one who finally figured out my autoimmune disease, and then I went in and demanded tests, which they fought me on, but when they finally gave me the tests, they came back diagnostic. I was much more gracious about it than I should have been.

I have to go pick up my records next week to take with me on my move back east, and I am afraid to even look in there.

by IndyLib on Wed Apr 19th, 2006 at 09:23:44 PM EST
[ Parent ]

Re: Indy (4.00 / 2)

Oh, you wouldn't believe one of the problems that I have been having--this is so insane, it is unbelievabe! Due to my tbi, I have lost some range of motion and on my right side. I am also right handed. Anyway, I have trouble writing w/a pen/pencil and paper. On a computer, I am fine.

And, what is giving me the most trouble is when writing by hand is that I can't write on lined paper, or official forms w/a bunch of lines or boxes on it--visual spacial perception is also limited--like a government form. Aslo, when I hold a pencil/pen and write by hand, it is too difficult. Seriously, that takes a lot out of me. I actually get a bit of a headache a/o floaters (sometimes) which are specks of light flashing in front of my eyes, when trying to do so.

To make a long story short, the holding of a pen and writing at the same time is what I can't do. I have had to ask people to fill out paperwork for me, if I do it myself, I get a bad headache, or I miss a few things. That doesn't happen on a computer.

Anyway, whenever people see traumatic brain injury, they automatically think that I need more tbi rehab and therapy and I don't. I am just so sick of dealing with this nonsense, but all I want is more computer training, and I can't get it!

They say one thing and do another. And expect me to be what I am not. Yeah, I have a tbi, but I am a hell of a writer. Focus on what I am good at, as opposed to looking for something that isn't there.

"First, they ignore you. Then they laugh at you. Then they fight you. Then you win." Mahatma Gandhi

by Street Kid on Wed Apr 19th, 2006 at 09:52:14 PM EST
[ Parent ]

Re: Indy (4.00 / 2)

Yes, you are one hell of a writer, and it is all the more impressive that you do what you do through the nature of your disability. I am so grateful to you for your coverage of the Medicare D(isaster), and I agree with Ductape, you really should be given some kind of serious award for it -- if the award came with cash, you could use it for the computer training! :)

by IndyLib on Wed Apr 19th, 2006 at 10:09:04 PM EST
[ Parent ]

Re: Indy (none / 1)

Thanks. Remember saying to DF at one time that w/all of the writing that I have been doing, I have never felt more productive in my entire life. Think that I may have finally found my niche.

"First, they ignore you. Then they laugh at you. Then they fight you. Then you win." Mahatma Gandhi

by Street Kid on Thu Apr 20th, 2006 at 01:37:34 AM EST
[ Parent ]

Re: Indy (4.00 / 3)

Depending on which rx's you take and what for, you may have to even be careful of what you eat! I can't eat grapefruit/drink grapefruit juice as it neutralizes a different anti-convulsant and, as a result, it has no effect. (Doesn't really bother me, I'm not that fond of grapefruit anyway.)

Another thing that you have to be careful of--some organic/herbal remedies, such as herbal tea, believe it or not. Double-check w/a pharmacist, I do. St. John's wort is also contra-indicated for me w/a different rx that I take. (Almost bought some tea once!)

Think I got this pretty much down pat now, at least I hope--when in doubt, ask!

"First, they ignore you. Then they laugh at you. Then they fight you. Then you win." Mahatma Gandhi

by Street Kid on Wed Apr 19th, 2006 at 08:17:37 PM EST
[ Parent ]

Re: Indy (4.00 / 2)

Good advice, Street Kid! It's always good to ask someone who knows.

I learned that lesson the hard way, lol. I had a really bad reaction to St. John's Wort and it made me so miserable that I am super careful about everything now. Plus, I'm allergic to soy, which is in practically everything so I'm obsessive about reading food labels, which helps me avoid sketchy things.

by IndyLib on Wed Apr 19th, 2006 at 08:26:54 PM EST
[ Parent ]

Kid, (4.00 / 3)

that is so true about certain foods and more importantly all those over the counter herbal and other home remedies. Many, many do not mix well with prescription drugs. As I mentioned even certain mega vitamin doses can actually cause more nerve damage for me.

'Poverty is the worst form of violence'--Gandhi

by chocolate ink on Wed Apr 19th, 2006 at 08:42:33 PM EST
[ Parent ]

Know something? (4.00 / 2)

I bought some multi-grain bread that had hops in it. Threw me for a loop, as hops also are contra-indicated!

"First, they ignore you. Then they laugh at you. Then they fight you. Then you win." Mahatma Gandhi

by Street Kid on Wed Apr 19th, 2006 at 09:10:47 PM EST
[ Parent ]

Rx's Can Cost MORE Under Medicare D(isaster)!!! | 42 comments (42 topical, 0 editorial, 0 hidden)

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